Week 13

Merry Christmas and Happy New Year!!!  We are truly grateful for your prayers and thoughts through out Daniel's journey!  Here is an update on Daniel's progress.  Daniel finished his last two therapy sessions on Thursday December 29.  His speech and physical therapists are giving evaluation reports to his neuroscience.  He will have a follow up the middle of January.  In the meantime he has been given a routine exercise program so he can continue to build stamina and speech therapy lessons to continue with at home.  Daniel is doing remarkably well.  He indicates that he enjoys his naps due to the fact he gets tired throughout the day.  Daniel has always stated since he woke up that his feet are cold.  They are still cold and when he takes a shower his feet feel like they are burning.  This is one of the topics we will be asking about with his neuroscience doctor.  Daniel now has his glasses for distance and although he says "I don't need these", his parents find it funny when he is watching TV or reading signs in the car while wearing his glasses.  We will make comments like "Oh you can see better can't you".  Daniel's tracheotomy hole is still healing.  It continues to ooze as it is not completely healed.  BIG NEWS, Daniel's neuroscience doctors has given him permission to ski with Dad.  Dad is grateful it has been a mild winter, cause I'm a nervous wreck.  However, we went skiing for the first time together Tuesday December 27.  He is absolutely not allowed to do any jumps, tricks and rails (or anything else).   Helmet is required.  Daniel and I had a great time together but you could tell Daniel was very fatigued.  Daniel has also gained five pounds from his original loss of 23 pounds.  He is very excited about this as he continues his physical exercise routines.